Sadies Journey
Sadie has been diagnosed with Carvajal Syndrome- which is a mutation of Naxos disease. It’s incredibly rare and difficult to manage. Less than 100 people worldwide have ever been diagnosed with this disease.
LIFE OF SADIE
What We Write About
Anything BIG or SMALL that happens with Sadie in her Journey with her new medical condition.
Get Inspired By My Journey And Story
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Want to help
Sadie and her family have a few ways you can!
you can go to https://www.supportnow.org/long-family
or help by getting from her wish-list at: https://www.amazon.com/hz/wishlist/ls/1U3HY56O7NRSS?content_source=fb&fb_content_id=Q9-wBQG8rGmQc5jYOQgYRtx2Jo_FXp8oVz0YIfUc9KEpT6SQedr5C0FOqAnq3HglenE&channel_type=fb&fbclid=IwY2xjawS3pH1leHRuA2FlbQIxMABicmlkETBJWndpSEgxWGd3VzRheDVtc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHg9hmLCHQhRhcPujltHWDZKTFJyu_CgOgy_P4fC8giXqSP1yRaasEKMH_Jfb_aem_4mMuMNsBmsftUXRx1iEIXA